The mini list was created to help parents of children and patients with Brain Stem Glioma tumors for:
* Sharing research
* Double check what the doctors are recommending
* Offer a shoulder of support
*Sharing results, what is working
* Offer a resource to newly-diagnosed patients, in conjunction with Jim Kenzig's home page and profiles
The following people are currently on the list:
Some of the people on the bsg mini-list: ---------------------------------------------------------------------------------------------------------
mailto:jimkenz@concentric.net - Jim Kenzig, father of Kristen 10 (dx 12/96, deceased 9/97) (Cleveland, Ohio)
mailto:ChJoSi@aol.com - Jo-An Simon, mother of Amy, age 13, dx 11/96 (Detroit, Mich.)
mailto:candrew@activa.net - Clifford Dowler, father of Alexandra, age 5, dx 4/97
mailto:BigDivaD@aol.com - Susan Nelson, mom of Laura, age 14, dx 11/96
mailto:Janet.B.Hawkins@snet.net - Janet, mother of Kelsey, age 8, dx 4/92 (Hartford, Connecticut)
mailto:tallyho@juno.com - Carol Manning, mother of Carly, age 12, dx 7/96 (Portland, Oregon)
mailto:cohen@math.uchicago.edu - Adam Cohen, brother to Jessica, age 23, dx 7/96 (New York/Phoenix)?
mailto:rjp@emilab.com- Randy & Gina Porter parents of Justin, 6 (dx 12/95, deceased 8/97) (Virginia)
mailto:dscott@awnet.com - Doug & Jodi Scott, parents of Cassandra, 7, dx 7/97 (Winnipeg, Manitoba, Canada)
mailto:watto@iinet.net.au - David Watts, Self 43, dx 6/94 (Perth, Australia)
mailto:teri@localaccess.com - Teri, mom to Justin, age 9, dx 1/97 (Washington State, between Seattle and Portland)
mailto:mandywolfryd@compuserve.com - Mandy Wolfryd, Mom to Luanne, age 20, dx 5/94 (Essex, England)
mailto:Bt1Diva@aol.com - Sheryl Shetsky, age 40, dx 1989, recur 1995 (Florida)
mailto:CureALou@aol.com - Juliet Freitag, mom to Kyla 34 months old, dx 9/96 (NC moving to Texas)
mailto:Ncybass@aol.com - Nancy Bassett, mother of TJ 11, dx 1/97 (Boston)
mailto:ppearson@netcom.com Peter Pearson, Wife dx 1994 Brain Stem Glioma
mailto:GAMMAHILL@geocities.com - Marsha Hill, 20-year old son (deceased 8/96)
mailto:dsata@nconnect.net - Sue Rohlinger, mother of Tim, 17 (dx 12/95, deceased 1997)
mailto:JenMCMS@AOL.COM - Jenny Tresh, daughter Elena, age 4, dx 5/97 (Florida)
mailto:slater@home.com - Lynn Slater, father of Dustin, age 7, dx 9/97 (San Francisco, California)
mailto:McKnightMS@aol.com - Scott McKnight, wife Missy, age 30, bsg (astrocytoma), dx 7/97
mailto:MMiloscia@aol.com - Mary, mother of Stephen, age 39, dx 11/91
mailto:zgm@netvision.net.il - Noam Zegman, father of Itamar, dx 3/97, pontine bsg (Israel)
mailto:schloffmd@aol.com - Linda Wachtel, mother of Tory, age 12, JPA (Juvenile Pilocytic Astrocytoma) in the Pons Dx 1987
mailto:kschow1@aol.com - Kim Schow, mother of Marissa, age 2, JPA brain stem dx 1/97
(P.S. the people above whose loved ones have passed on have specifically mentioned that they still wish to be included in these postings)
To Subscribe to the List just click below on the link.
When you subscribe it is suggested you give tumor type and treatment information and sign your message with something like the following
Your name
Parent (mother/father)of (childs name), (childs age), (diagnosis and date)
mailto:your email address
To subscribe to the Brain Stem Glioma Minilist and click on the link below.
|| Brain Tumor/Cancer Orgs||Pediatric Links||Hospitals and BT Centers||Medical/Drug Information Links|| ||Alternative Treatment Links||General Cancer Information Links||General Brain Tumor Information Links|| ||Brain Surgery and Pathology Links||Information For Specific Tumor Types||Sites for Bereavement/Grief||
Disclaimer:These links are provided for information purposes only. The author of this page claims no responsibility for any of the content provided by these sites. The worldwide web can sometimes contain false or misleading information. Use this information at your own risk and discretion.
This page is maintained by Jim Kenzig in memory of Kristen
Last Updated 3/16/98